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Young Dementia News - February 2018

This is an email from YoungDementia UK sharing information
about young onset dementia.

Young onset dementia books listing

Wendy Mitchell's must-read memoir Somebody I used to know has quite rightly received lots of excellent publicity in the last few weeks. 

We list Wendy's book and many others written by people affected by young onset dementia such as Jim's booklet of poetry on our website, click here to take a look.

Somebody I used to know by Wendy Mitchell

Wendy was diagnosed with young onset Alzheimer's disease aged 58.  She has written a memoir detailing the time leading up to her diagnosis and her extraordinary life since.

Click here to buy Wendy's book.

To Know Me by Jim Horton

Jim has found that writing poetry helps him cope with the emotional impact of caring for his partner, Jane, who is living with young onset Alzheimer's disease, and is now in residential care. A selection of his poems have been published to support YoYo, a young onset dementia support group in North London. To Know Me costs £5 and can be bought here.

Become a Dementia Diarist like Keith Oliver

Over 30 people from all over the UK who are living with dementia use the Dementia Diaries project to tell the rest of the world about their views, experiences, joys and challenges. If you’d like to join them, the process is very simple.

When you register as a Diarist, you are given a special phone number and you can record your message at any time, anywhere - just like leaving a voicemail.  You can see the other Diarists and hear all the audio diaries on the Dementia Diaries website. 

If you want to know more please contact Philly on philly@myid.org.uk 

They also always need volunteer transcribers. It is very simple - you can do one or lots, depending on how much time you have - and you don’t even have to get in touch. Just go to https://dementiadiaries.org/volunteer, choose an audio diary and get typing!  They would hugely appreciate this help. 

Specialist holidays for people with young onset

Dementia Adventure is a charity who have offered holidays to people with dementia and their carers to enjoy together for seven years.  They aim to offer a full range of activities adaptable for people at all stages of dementia and with all kinds of physical needs too.

The first holiday you book with them in a calendar year is supported by their charitable fundraising to make it affordable, and they do have a bursary pot available for people who are on means tested state benefits.

They are offering two departures this summer dedicated to people living with young onset dementia and their families, in rural Dorset on a working farm. The two itineraries are designed with plenty of outdoor activity and fun, and one is during the school holidays and children under 14 can go free. Each family will be supported by a specially trained member of the Dementia Adventure team, as well as the staff from the farm. 

Find out more about the Dorset under 65s holiday here and the family friendly holiday here

YoungDementia is looking for a new Chair of Trustees

This presents an exciting opportunity to join the charity at a pivotal moment of national development and growth.  The Chair of Trustees will provide strategic leadership to the Board and the Management Group to enable a range of national projects to be piloted, developed and evaluated.

The new Chair will become an ambassador for our dynamic charity and help fulfil our intention to offer support, information and connection to people with young onset dementia across the UK.

For further information, click here.  Or for an informal conversation about the role, please contact Tessa Gutteridge, Director – tessagutteridge@youngdementiauk.org or tel 01993 776295.

Are you eligible for a refund on your power of attorney application?

Did you know that you can get part of your application fee back if you applied to register a power attorney from 1 April 2013 to 31 March 2017?

This applies to lasting powers of attorney (LPA) and enduring powers of attorney (EPA). Find out more via this link.

Consultations - have your say

The government is proposing to extend the Blue Badge scheme to people with 'hidden disabilities' such as dementia. They are currently consulting on the proposal, you can respond via this linkThe consultation closes on 18 March.

The London Assembly Health Committee is investigating what support is available for people living with young onset dementia in London. Organisations and individuals are invited to submit views and information to the committee, giving you the opportunity to inform their work and influence their recommendations. The deadline for submissions is 1 March 2018. To take part in the survey, click here. 

For everyone diagnosed with any type of dementia, join Dementia Alliance International

Dementia Alliance International is an advocacy and support group, of, by and for people with dementia.

- Membership is free
- Weekly support groups are free
- Online cafes are free
- Educational webinars are free
- Brain Health meetings are free

They support living with dementia, not just dying from it.  Their focus is on grass roots support, education, awareness and international advocacy for human rights for all people diagnosed with dementia and our families.

Join DAI here.  Families, professionals and supporters can subscribe to the DAI's regular blogs and newsletters at www.infodai.org

March is Coffee & Cake month!

It’s back!  March is Coffee & Cake month where we encourage our friends to put on the kettle and bake a bun. 

Inviting the neighbours around, gathering colleagues, buttering up the local café to run a promotion… anything goes as long as it involves cake and helps raise money for YoungDementia UK! 

Get involved or find out more here.

Thanks to everyone who has updated their mailing preferences. 
Have you?

On 25 May 2018, data protection laws will change.  This means that unless our charity can show that you have chosen to receive our mailings such as Young Dementia News, then we may have to stop sending it to you.

If you've not yet confirmed what mailings you want to receive from YoungDementia UK, you can do so by completing our mailing preferences form.

 

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